Home > DaVita Dialysis, dialysis, kidney disease, stress, Vascular Surgeon > Hello Bon? You out there???!!!

Hello Bon? You out there???!!!

Things here are going along quietly, and while that is good, I am often afraid to hope. I did that back in July by saying that things were going really good, and we know how that turned out. Two weeks in the hospital with a case of sepsis!!!!!

So with that, I will silently hope for the best, but not brag. Every time I allow myself to think that things are going well, I get into trouble!!

You can’t run away from trouble. There ain’t no place that far. ~ Uncle Remus

So anyway, around here, Mark’s been doing pretty good. He got his catheter out on Columbus Day which was the 11th of October. I actually got to watch the procedure!! I thought the vascular surgeon would kick me out, but he didn’t!! I found it pretty fascinating, in a sick kind of way!! Dr. Ciervo cut into the area around the catheter. I should have video’ed it!! Now THAT would have been cool!! Dr. C had a bit of trouble getting the catheter out due to the scar tissue build up, and the fact that, due to Mark’s body build, the insertion had to be pretty deep, but he got it out with some tugging, pulling, cutting, and blood!! But a few stitches and it was all good.

Mark is STILL afraid of infection, and he still has me putting neosporin and bandages on it. It is closed up now. It is healing nicely — considering that it looked pretty nasty when the procedure was first done. The surgeon told him that he should monitor it for about 3-4 days, and then it should be fine if it had no signs of infection. Well, it’s pushing 4 weeks now. But who am I to judge?

The graft is working pretty good so far. It gets checked again in January for any blockages or clots, etc. No more problems for a while PPPPPLLLLLLLEEEEAAAAASSSSEEEE!!!

Mark’s job is going pretty good too. He seems relatively happy teaching again instead of being the Technology Coordinator. He enjoys the kids, and I do believe the teaching is easier on him. The Tech job became pretty bad when they assigned the coordinators to handle TWO SCHOOLS. So he would have been doing double the work, in the same amount of hours, for the same amount of money. I think not!!! Glad he is teaching… and he is teaching the 3rd, 4th, and 5th graders. They are still teachable, and they don’t bring guns, knives, and other weapons to school!!!

Oh, we also got a different health insurance company, effective October 1. We had Horizon Blue Cross Blue Shield, and now we have Aetna. All co-pays and stuff remain the same — and in some ways, the new insurance is better. Aetna does not charge a $35 co-pay for Mark’s dialysis, so he just pays our normal $5 co-pay. That saves us a nice bit of money since he was able to drop his medicare insurance.

Luckily our doctors and specialists all accept Aetna. I would hate to have to deal with finding new doctors and stuff. That would just not be fun.

As for me, I am exhausted. And to be honest, I have not been feeling well.I thought it was stress related since it started in late July when Mark got sepsis. But it has not gone away. For the record, the stress didn’t go away either (although some of the pressure has been lifted), but I don’t think my symptoms are normal. I will spare you the gory details, but I felt “unwell” enough to visit my doctor. I’ve been having intestinal and digestive problems. I talked to my primary care doctor about it, and she thought it best to refer me to the gastroenterologist in the office for evaluation. Dr. Webber did a Celiac Panel because he thought that my symptoms could be indicative of celiac disease. And, as if I am not having enough fun these days, had me schedule a colonoscopy. Oh joy. Can’t wait for that!

The Celiac Panel gave back negative, so now the colonoscopy is imminent. I was hoping that I could avoid it for a couple more years. I also went to the gynecologist for a check up to rule out any “female issues”. I figured it couldn’t hurt. He said things seemed normal. I told him about my symptoms, the Celiac test, and the colonoscopy. He seemed to think that was a good plan. He did mention that although the Celiac Panel came back negative, I could still have Celiac Disease, and the best way would be a small intestine biopsy. He said that my symptoms certainly are those of Celiac Disease, although, they could be many other things. Ugh… not something I want… so we will see what the colonoscopy reveals, if anything.

I am also battling insomnia. That’s nothing new though. I usually stay up pretty late (12-1 AM) on a week night, but these days, sleep does not come so easily. I’ve been up at 2AM, or 3AM, or even 4AM. Not a good thing when you have to start the day at 6AM!!! Not sure what the problem is. Stress? Anxiety? Life? An underlying medical issue? Who knows. It’s ugly though. I feel exhausted by 6PM, and then all motivation just about leaves me. I just want to sit on the couch and do as little as possible. I try to do some stuff during the week so that all the chores are not waiting for me on the weekend, but lately I have to FORCE myself to do anything that requires moving or thinking. Look up “couch potato” in the dictionary… I bet my picture will appear!! 🙂

Being that blogging requires thinking, I have been pretty silent lately. I just don’t seem to have a desire to write. That’s odd for me. I enjoy writing. It frees my mind. Now I free my mind by endlessly watching TV, playing Spider Solitaire, and Farmville. How pathetic!!! I think that it’s all catching up with me. Sigh…

But I guess I do need to be more chatty when it comes to writing this blog. I know it’s all about my struggle with Mark’s kidney disease, so I suppose this qualifies as my “struggle”. Even though the insomnia has reared its ugly head recently (which is not something that its done in quite a while), and the gastro disorders are causing me discomfort, and the stress/anxiety is still around…. it’s still MY struggle… and I get to write about whatever it is that I feel like it.

So that’s where we are these days.

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  1. November 19, 2010 at 2:40 AM

    Just an excellent blog you have here. Its very information and I enjoy reading it. I try to visit your blog about twice a week just to see what you have posted 🙂 Keep it up. I was wondering if you can exchange links with me, my blog is http://dialysis-patient-care.blogspot.com, it will really help our Google PageRank and at the same time, it will increase our visitors. I would love to share you stuff to my readers. I went ahead and added your blog to my blogroll, hope you can also do the same.

    Sincerly,
    Emma

    • November 19, 2010 at 1:20 PM

      Hi Emma!!

      Thank you for visiting my blog!! I will most certainly link to your blog!! I just visited it, and it has a WORLD of wonderful information!! I will have to take some time to read through your posts, and also will sign up to be notified of new posts!!

      Best to you,
      Bonni

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